The UK has millions of samples and billions of data points collected from UK patients who have agreed that their samples and data can be used for research. But we have found out that small UK medical research companies struggle to access them.
“Over 90% of SMEs said that access to high quality clinical samples was important, while 80% found accessing samples unexpectedly difficult.”
From our State of the Discovery Nation report
Working with organisations such as the UK Clinical Research Collaboration Tissue Directory and Coordination Centre and HDR UK, we are supporting and developing directories of consented tissue and data, as well as research services for SMEs procuring access to these assets. We have also formed a collaboration with Tissue Solutions, to support the UK SME community with clinical sample procurement.
We are also ensuring that SME requirements are known to data owners, and supporting these owners in building brokerage services around their datasets to ensure that smaller companies can use the data on reasonable terms.